Recap of SXSH “Unconference”
It has been a whirlwind since SXSH (Sharing. Exchanging. Social Health.) a few weeks ago! I’m finally getting around to re-capping it from the Think Brownstone perspective, but that’s fine since we had Phil’s take on ePatCon 2011 to tide us over…not to mention the great recap of SXSH from Deirdre at WalkWithWill, whom I was lucky enough to join at the event.
First off, kudos to Shwen, Dana, Kerri, and Jenni for putting together a really engaging event and keeping the spirit of an “unconference” alive in the face of increasing interest and attendance. When you design something to purposely go against the grain, it can be a bit disconcerting when it grows to the point that sanity dictates having to pull in some more of the conventional logistics. These are the good kind of problems to have. Plus, personally, whether or not something is ultimately worthy of the label “unconference” is immaterial to me – what I care about is the substance and the spirit of the day.

It was a brisk single-day event packed with engaging speakers, and I won’t go through an exhaustive recap of each but will instead use this as a place to quickly capture some thoughts and links that I made note to take some time further digging into.
Todd Park (CTO, U.S. Department of Health & Human Services) was a smart choice as keynote speaker and a great way to start the day. If we’re ever going to get to a future state of healthcare that truly works for everyone, we’re going to need to know that there are good, smart folks in the government actively fighting the good fight – and Todd immediately struck me as the type. Lots of great info here on how he’s working with HHS to exploit data and technology to make serious strides – and he’s got quite a track record going for him. I was duly impressed, and made note to get more familiar with the data, functionality, and concepts employed by the Blue Button campaign, The “Direct Project”, Healthdata.gov, Asthmapolis, Doximity, and Ozioma.
Ed Bennett from the University of Maryland Medical Center had a fantastic presentation jammed full of the latest data around how social media is really being used in healthcare – it’s no longer up on his site (that I can tell), but poking around on there will be enlightening all the same. I especially liked his quote that “social media is a conversation, not a lecture” – which is relevant to pretty much everyone using social media tools, let alone every organization that tries to – healthcare or not.
You can, however, find the presentation from Melissa Davies (“Healthcare Social Media By The Numbers) – and dang, if you want to dig into the numbers, and you want REAL numbers, leave it to someone from NM Incite (Neilsen/McKinsey). Fascinating, well-organized and well-presented stuff in here – it is well worth your time to review.

Yours Truly With The Organizers & The Minds Behind WeAreAllPatients.com - Catch Us Together At BlogWorld!
Another quick shout out would be to Mark Bard for founding digitalhealthcoalition.org, recognizing that change has to start with all-inclusive conversations, but requires moving beyond conversations (we’ve got plenty of those) to real action if we’re going to make good on all of this “talk.”
Also, I candidly told ePatient Dave that I had been wondering what his “second act” would be to his powerful patient story after I saw that talk a few times. That story was always about more than just Dave, and he masterfully drew analogues to all patients and thus, all people. But where would he take it from there? Where could he take it, and how would it fly? I’m happy to report that Dave’s new talk came from a place that was more holistic and data driven, and he was as powerful and convincing as ever. Bravo, fella.
A pleasant surprise was the presentation by the folks at ismycancerdifferent.com, who sponsored lunch (which was fantastic, BTW) and gave a talk during that timeslot. That’s usually enough to raise an eyebrow and make you brace for a sales pitch, but what we got was the farthest thing from it. I was extremely grateful to be exposed to their site and their mission, and think that they’ve got a really unique for-profit model that gives them a lot of ammo to do some serious good for cancer patients and beyond.
Finally, I made sure to attend the superhero team-up of Jenni and Kerri who moderated a discussion around patient advocacy and kicked off their “We Are All Patients” campaign that pushed into ePatCon the following two days. Always professional, they surfed the churning waves of differing opinions and made powerful arguments bringing the room back to the inevitable – those differing opinions are valid, but we won’t get anywhere without compromise and understanding that at the end of the day, we’re all in the same camp (like it or not): patients.
Here’s hoping we continue to do more to achieve some real progress and move from talk to action – something we’ll be working on out at the Social Health track of BlogWorld in in Los Angeles this year (11/3-11/5). I’m happy to report I’ll be moderating a session including Jenni, Kerri, and Katie from overflowingbrain.com. Hope you can come out and join us!














